Vt. mom takes on FDA to get son experimental drug - WCAX.COM Local Vermont News, Weather and Sports-

Vt. mom takes on FDA to get son experimental drug

Posted: Updated:

A Saxtons River mom is fighting for her sons and she's taking the battle all the way to the Food and Drug Administration.

We first introduced you to Jenn McNary and her sons in August. Max and Austin both suffer from Duchenne muscular dystrophy. Max, 10, is improving because he's taking Eteplirsen in a clinical trial. But his 13-year old brother, Austin, doesn't qualify for the trial because he's wheelchair-bound.

Wednesday, Jenn McNary and others are presenting a petition with 170,000 signatures on it to the FDA. The petition requests the FDA accelerate approval of the drug and make it available to the 20,000 children nationwide with Duchenne.

Related Story:

2 Vt. brothers battle deadly disorder; only 1 can get treatment

Powered by WorldNow
All content © Copyright 2000 - 2014 WorldNow and WCAX. All Rights Reserved. For more information on this site, please read our Privacy Policy and Terms of Service.